Looking back through my 35 years with Cystic Fibrosis I can't help but wonder about all the good and bad times I was forced to miss. Birthdays, holidays, good times with friends, bad times with friends. There was always one thing you could count on and that was getting sick and not being able to attend something. Small events big events, good events and bad. Things you wanted to do along things you didn't want to do. I think it kept me from trouble and it held me back from achieving.
Lets give credit where credit is due, I have met the most influential people through CF. Close, very close friends, entire families, The best Doctors, Nurses, and therapists. I have used CF as best I could to get the things in life I wanted, whether or not I did it consciously you'll never know. It gave me purpose and direction. It is the single focus of my being. CF is a love hate relationship mostly hate. A two way street, but in the end it ends up one way with me going against traffic and crashing.
Enter lung transplant, which has changed my life once again and has made me free of a few burdens of CF. More medication, but more individual freedom. I do see the DR a lot more often than I was used to. No hospital stays at all so far(I hope it stays that way). I have become more germ conscience, wash my vegetables and my fruit with lemon water, no deli meats or cheeses. Hand sanitizers are my best friend on public outings and no immunizations ever(Flu shot is the exception)!!!
Cystic Fibrosis always gets you in the end some how some way. I am blessed for the life I have lived this far. I remember and honor my friends who have fallen victim to CF in one way or another over the years. Feeling lucky to have laughed and cried with all of them. This disease has in one way or the other shaped my life for the better. I have never forgotten all the things in my past, but I am now looking forward to the events that will shape my future.
Amazing .. keep it up!
ReplyDeleteYou're my inspiration, Love you!!! XOXOXO
ReplyDeleteI am a friend of your Mom. I just want to say, that I know how proud and grateful that I know she is of you...and I can see why. I love what you say about CF being somewhat of a blessing, I have heard that from other people who have serious medical conditions. God bless you on your journey in this ole world. You have a lot of positive energy ...and I know that there are always people out there who need people like you to inspire them....like me. ;) Linda T.N.
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